Tuesday, October 27, 2009

Donations for Aaron

Thank you for considering a donation to "Aarons Angel Network Fund". It is our continued prayer and hope to enable Aaron to reach his full potential with intensive therapy. When Aaron was 5 weeks old, he was enrolled in our states early intervention program called First Steps. This is a wonderful program that assists many children with special needs from birth to 3 years old. However, we learned very early that Aaron's prognosis was so severe that the PT, OT, & Speech offerred through the EI program would be significantly inadequate. Here is additional information. After several months of research, and consultations with other parents in similar situations, we have identified several therapies that we feel will give Aaron the best chance to reach his full potential. They are as follows:

We have thoroughly investigated each of these programs and are confident that Aaron would greatly benefit from each. They all have special strengths to meet his unique needs and have proven track records for at least 15 years and as many as 50 years. Unfortunately, most of the cost of these therapies are not covered by insurance because they are still considered "alternative". Several are going through the rigorous process of clinical trials, double blind studies, etc to be covered by insurance but these processes and studies can take several years or decades. Obviously Aaron can't wait that long. We have a small window of opportunity to have a significant impact on his development and need to act quickly. Costs are always subject to change, but below is a rough itemization of the annual costs involved for each therapy:

  • ABR Training and Evaluations $1895 4 times/year = $7580
  • ABR Machine Rental = $4200
  • G-Therapy = $5000
  • HBOT Sessions 2 times/year = $8000
  • Family Hope Center 2 times/year = $6250
  • Anat Baniel/Feldenkrais (Intensive Sessions) = $4800
  • Masgutova Reflex Integration 2 times/year = $500

As you can see, these are substantial expenses but we know that Aaron will benefit immensly. We have already started 5 out of the six therapies and he has made great strides. But we need your help to continue. It is our prayer that you will join "Aaron's Angel Network" by:

  • Making a donation
  • Making a monthly gift of $13 per month
  • Volunteering your time or talent
  • Donating a non-monetary gift that can be used for a silent auction
  • Providing referrals to businesses, groups or organizations that may be willing to authorize the placement of a small snack box where the proceeds will go towards Aaron’s therapy fund
  • Providing referrals to businesses, groups or organizations that may be willing to hold a fundraiser, or donate their time, talent, or treasure
With every month that goes by, the gap between Aaron and other children widens, causing further delays. 75% of the brain develops within the first two years and we want to do as much as we can. We will continue to work after he turns two but want to lay a good foundation to build upon.

Please understand that EVERY donation, effort, or referral, makes a difference, no matter how small or large. Aaron will progress due to the small efforts of many and it is our hope and prayer that you will play a part in his journey with 1p36.



Monday, October 26, 2009

Anat Baniel

Here are the links and contact information for the Anat Baniel Practioners that have helped Aaron:



Claire Conley, GFCP ABMP
Movement is Life.com
1441 W. Rosemont Avenue
Chicago, IL 60660-1319
Office: 773.338.7883
Cell: 773.802.2580
Fax: 773.338.7885
ciconley@rcn.com
http://www.movementislife.com/



Marcy Lindheimer, Trainer with Anat Baniel
2109 Broadway, Suite 9-93
New York, NY 10023-2106
Phone# 212-362-8597
MLindheimr@aol.com



Suzi Marks
Mindful Movement
Old Elm Shopping Plaza
502 Old Elm Road
Highland Park, IL 60035
847-344-7676
suzmoves@aol.com